Violet’s Voice

Randy Vandewater / Family-Led Giving Campaign 2025

Our mission is to accelerate the discovery and development of a gene therapy for Skraban-Deardorff Syndrome, an ultra-rare genetic disorder caused by variants in the WDR26 gene. Through collaboration with researchers, clinicians, and families, we aim to turn scientific possibility into lasting hope.

  • $10,140

    Raised

  • $10,000

    Goal

  • 19

    Supporters

  • 0

    Days Remaining

Team Members

Recent Transactions

  • Randy Vandewater

    $5,240.25 / Yesterday

    Thank you for supporting Violet. We appreciate every one of you advancing the Science

  • Caroline Troupe

    $102.75 / 6 days ago

  • Randy Vandewater

    $25.69 / 7 days ago

    Keep it going!

  • Ulysses Kuhn

    $25.00 / 9 days ago

  • Randy Vandewater

    $796.31 / 9 days ago

    Way to go team Violet’s Voice! So glad to match your generosity!

  • Terri Schmid

    $513.75 / 9 days ago

    Violet I pray that you will someday find your voice and will never stop talking and singing!!

  • Anonymous

    $51.38 / 10 days ago

  • Eileen Allison

    $25.69 / 10 days ago

    Go Violet go!

  • Tyree Wieder

    $102.75 / 10 days ago

    Congratulations Violet, keep moving forward!!!

  • Carolyn Archbold

    $100.00 / 10 days ago

    Keep up the great work, Violet!

  • Randy Vandewater

    $154.13 / 11 days ago

    Way to keep it going day 4 supporters! We appreciate you!

  • BETTY Creasy

    $51.38 / 12 days ago

    GO Sophia and Randy! Team Violet!!! From Grandma Betty Creasy

  • Jose Gudino

    $100.00 / 12 days ago

  • Randy Vandewater

    $565.13 / 12 days ago

    Thanks you day 3 supporters! We are excited to have you are part of this life changing research for Violet and other Skraban-Deardorff families. Here is our matching support.

  • Cyndi Rozenko

    $205.50 / 12 days ago

    Looking forward to all the magical things Violet is capable of! Love and hugs!

  • Conrado Rodriguez

    $51.38 / 13 days ago

    We love you Violet! Family Rodriguez

  • Bonnie Duhart

    $308.25 / 13 days ago

    Sending you lots of love! Bonnie, Antonio, Ana, Alexandra, & Andresa.

  • Randy Vandewater

    $565.13 / 13 days ago

    Thank you for the second day of generous contributions to help Violet find her voice. We are pleased to provide a matching donation to fund this great research!

  • United United States

    $51.38 / 14 days ago

    Go Violet! Keep up the good work!

  • Arthur Reppas

    $205.50 / 14 days ago

    Go Violet!!

  • Karen Hill

    $25.69 / 14 days ago

  • Suzanne Cohen

    $256.88 / 14 days ago

    Go V! We're all so proud of your hard work with your therapies. Your mom and dad are pretty awesome, too!

  • Randy Vandewater

    $308.25 / 14 days ago

    First matching donations are in! Thanks so much for your support.

  • Tracy Gereg

    $51.38 / 14 days ago

  • Anonymous

    $256.88 / 15 days ago

    So proud of all the hard work! Good job! Stay strong and be encouraged! Can’t wait to hear that voice.

About Violet’s Voice

Skraban-Deardorff Syndrome is an ultra-rare genetic disorder caused by variants in the WDR26 gene. For families like Violet’s, time is precious — and so is research. Violet, and every child with Skraban-Deardorff Syndrome, deserves a future filled with possibilities. Because SKDEAS is so rare, research depends entirely on the determination and generosity of families and supporters like you. Every dollar you give brings us closer to a gene therapy solution that could change lives forever — turning hope into healing for children who need it most.