Team Tyler

Rebecca Woodbury / Family-Led Giving Campaign 2025

The SKDEAS Family-Led Giving Campaign supports the SKDEAS Foundation.  Funds raised help to advance understanding the SKDEAS diagnosis, create helpful resources for families, and build a stronger community.  Team Tyler is proud to join the 2025 SKDEAS Family-Led Giving Campaign to raise funds in honor of Tyler and all families affected by the Skraban-Deardorff syndrome diagnosis.

  • $590

    Raised

  • $100

    Goal

  • 9

    Supporters

  • 26

    Days Remaining

Recent Transactions

  • Sarah Prince

    $25.69 / 14 days ago

  • Neil Becker

    $51.38 / 15 days ago

  • Cynthia Enos

    $102.75 / 15 days ago

  • Michele Strittmatter

    $51.38 / 15 days ago

    I hope this donation helps make a positive impact. Thank you for your dedication and passion in making a difference. Keep up the amazing work!

  • Melissa Paulus

    $51.38 / 15 days ago

  • Rebecca Woodbury

    $102.75 / 20 days ago

    One day at a time, keep shining my sweet boy!

  • Christina Hunter

    $51.38 / 22 days ago

    Team Tyler always! 🩷💚💛🩵

  • Trina Thompson

    $102.75 / 22 days ago

    TyTy is such a sweet boy that I’ve had the honor of knowing and spending time with. Good luck with your fundraiser Tyler!

  • Stephanie Laforge

    $51.38 / 23 days ago

    So incredibly proud of Tyler and all of his amazing progress🩵

About Team Tyler

Tyler was diagnosed with Skraban-Deardorff Syndrome when he was around 9 months old.  He is 1 in less than 200 individuals worldwide that have been identified with this rare genetic syndrome. He has global developmental delays, profound intellectual disabilities, seizures, and other clinical symptoms that align with this syndrome. 

Tyler is now 7 and he spends his days working hard to master life skills that most of us do without thinking. Things like walking, talking, communicating, feeding himself, and understanding the world around him. While he learns to adjust to our world, we’re learning every day how to adjust ours to his. 

Our weeks are filled with appointments, therapies, bloodwork & tests, Tyler meltdowns, and of course moments of worry, always wondering if we’ve missed something or could do more for him. Yet they are also filled with JOY, gratitude and celebration for every small milestone. Friends often say, “I don’t know how you do it,” but the truth is, you just do!  (As I write this at 2am on another sleepless night with him…!!) 

Next July, we’ll head to Philadelphia for our 3rd SKDEAS Family Meeting. It’s lovely to be surrounded by our SKDEAS families and hearing from the doctors, scientists, and researchers, all coming together to share, learn, and support each other.

Life with Tyler isn’t easy, and it’s certainly different from what I once imagined about having kids. But this boy brings such JOY to everyone who knows him, and he is so deeply loved. Tyler gives the best hugs, and his laughter, especially those deep belly laughs when he’s watching his favorite Muppet Babies, is the best ever.

Whether you choose to donate, share our page, or simply take a moment to learn about SKDEAS, thank you for helping families like ours.