Team Ceci

Emily Gerst / Family-Led Giving Campaign 2025

During this season of gratitude and generosity, Team Ceci is proud to join the 2025 SKDEAS Family-Led Giving Campaign to raise funds in honor of Cecilia and all families affected by the Skraban-Deardorff syndrome diagnosis.

  • $2,198

    Raised

  • $2,000

    Goal

  • 18

    Supporters

  • 26

    Days Remaining

Recent Transactions

About Team Ceci

Cecilia, affectionately known as Ceci, is a kind and loving eleven year old living in Wisconsin. At the age of six, she was diagnosed with Skraban-Deardorff syndrome, a rare genetic disorder often characterized by intellectual disability, speech and language challenges, seizures, and more. While this diagnosis impacts Ceci every moment of every day, she lives life with the biggest smile on her face and spreads joy to everyone she meets. 

Connecting with our growing SKDEAS community and the SKDEAS Foundation has been life-changing for our family. We are incredibly grateful for the many valuable opportunities these connections have given us, including: 

  • learning best practices from professionals and other caregivers all across the world to help Ceci to thrive 
  • staying up-to-date on a wide variety of research being performed to better understand and treat Skraban-Deardorff syndrome 
  • access to quality resources provided by the SKDEAS Foundation and its partner organizations 
  • creating deep, lasting friendships with other SKDEAS families ā™„ 
During this annual time of giving, our family asks that you consider contributing toward the SKDEAS Foundation, giving Ceci and all of her SKDEAS friends the brightest future possible. We appreciate your support!