Team Allie

Sherri Blaik / Family-Led Giving Campaign

Allie jumps out of bed every day ready to begin her day with joy and happiness.  She loves her brother Mattox, dog Jenny, friends and family.  She is an inspiration to everyone she meets and has never let her challenges stop her.  She works so incredibly hard every day to do the things most of us take for granted.  She is always happy and has the biggest smile no matter what comes her way.  

Allie lives with Skraban-Deardorff Syndrome, a rare genetic condition, and her journey has taught us the power of hope, community, and perseverance. Our family, along with others facing similar journeys, is joining the SKDEAS Family-Led Giving Campaign to raise funds for research and support. Every dollar raised will go toward understanding this condition better, developing resources for affected families, and creating a brighter future for Allie and others like her.

By contributing to this campaign, you’re not just supporting a cause; you’re standing beside Allie and countless families who greet each new day with courage.  On behalf of Allie and families like ours, thank you!!!!   

  • $873

    Raised

  • $1,000

    Goal

  • 8

    Supporters

  • 17

    Days Remaining

Recent Transactions

  • Aggie Krittenbrink

    $102.75 / 33 days ago

  • Robert Jackson

    $51.38 / 48 days ago

  • Pam Hunter

    $102.75 / 48 days ago

    Allie smile lights up a room, and she brings joy to anyone she meets. She’s truly a special young lady!!

  • Michael Humphries

    $154.13 / 49 days ago

    Let the research continue! Allie rocks!

  • Mark Krittenbrink

    $102.75 / 49 days ago

    Allie has the sweetest smile, and wears it in all of the activities in which she participates. She truly seems to enjoy life and it’s always a pleasure to watch her live it.

  • Ellen Fleming

    $51.38 / 50 days ago

  • Andrea Mays

    $51.38 / 50 days ago

    Allie’s smile and bubbly personality makes our day! Luke is so lucky to have her as a friend! Todd, Andrea, Molly and Luke Mays

  • Sherri Blaik

    $256.88 / 62 days ago

About Team Allie

For sixteen years now, our daughter, Allie, has been an absolute joy to our family and an integral part of the fabric of our lives.  Her never-wavering happiness, smile and desire to achieve is inspiring and has helped strengthen us brought us closer as a family. Her successes have been beyond the doctors’ predictions and have far outreached our expectations, but they have not come without tremendous hard work and sacrifice because Allison lives with a very rare genetic condition called Skraban-Deardorff Syndrome.  There is very little is known about the syndrome at this time.  Fortunately for Allie and other afflicted with this condition, there is SKDEAS Foundation.  This foundation exists due only to the generosity of donors across the globe.

The SKDEAS Foundation has kicked-off its Family Giving Campaign, which runs through “Giving Tuesday”, December 3, 2024.  They are hoping to raise $25,000 for research, resources, and a brighter future for those afflicted with Skraban-Deardorff Syndrome.

With the economy in its current state, it is certainly understandable that most have tightened their contribution belt, but any amount, big or small, that could be spared is most welcome in helping them reach their goal.

On behalf of Allie and families like ours, thank you!