The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome. Our goal is to raise funds for research, promote public awareness, and align scientists, patients, parents, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to treating people with Skraban-Deardorff Syndrome and related diseases.
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About Team Laila

The Escalante family would deeply appreciate any support you can give to the SKDEAS foundation during this season of giving! They are doing excellent work to find new drugs, therapies, and resources that help all of these extraordinary kids!

Laila was diagnosed in Spring of 2021 with Skraban Deardorff Syndrome. It presents everyday hardships for her navigating this world. The support of the foundation is not only crucial for her growth, but helps support all parents in this small community.