Team Jellybean

Jen Marrion / Family-Led Giving Campaign

This Giving Tuesday (December 3rd), please support Team Jellybean and the SKDEAS community in raising funds for research and support for those affected by Skraban-Deardorff Syndrome. This rare genetic condition occurs when individuals have only one functional copy of the WDR26 gene. As a newly discovered syndrome, more research is crucial to better understand its impact on development and to explore potential treatment and management options that can improve lives. 

  • $834

    Raised

  • $250

    Goal

  • 9

    Supporters

  • 17

    Days Remaining

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About Team Jellybean

Josslyn was diagnosed with this condition at the age of six. Throughout her life, she has worked incredibly hard to overcome challenges—learning to walk, talk, and accomplish things that come naturally to many. She continues to give her best every day. Josslyn is a happy, funny girl who loves to laugh and make others laugh. She enjoys singing, dancing, and telling jokes, and she amazes everyone with her impressive memory, quoting lines from her favorite songs and TV shows. Please join us in supporting Josslyn and others impacted by Skraban-Deardorff Syndrome this Giving Tuesday (December 3rd). Your donation will directly contribute to vital research. To learn more about how your support can make a difference, visit skdeas.org/research.