Alyssa Woulfe

Team Isla / Family-Led Giving Campaign

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The SKDEAS Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals living with Skraban-Deardorff syndrome. The foundation's goal is to raise funds for research, promote public awareness, and align scientists, patients, parents, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to treating people with Skraban-Deardorff syndrome and related diseases.

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  • $4,512

    Raised

  • $1,500

    Goal

  • 45

    Supporters

  • 4

    Days Remaining

Team Members

Recent Transactions

About

This year for Giving Tuesday ( December 3rd), our family is raising money for the Skraban-Deardorff Syndrome (SKDEAS) Foundation in honor of Isla and 150+ others affected by this diagnosis around the world. 
After 11 years of struggles and uncertainty, Isla was recently diagnosed with this rare genetic condition characterized by developmental delay, intellectual disability, speech and language difficulties, and seizures among other challenges. Skraban-Deardorff is a newly discovered syndrome so the community is still trying to understand this condition better. 
Isla works so hard to attain skills that come easy to most and she often does so with a smile on her face and an infectious giggle. She loves her sisters, school, soccer, theater, and her cats.
Your support will allow for the SKDEAS Foundation to continue to accelerate research for better treatment and care for the children and families living with this condition. Thank you from the bottom of our hearts.