Skraban-Deardorff Syndrome Foundation

Parent/Child Registration Form

Parent/Child Registration Form

Parent(s) Information

The SKDEAS Foundation is building a strong community across the globe to support people with WDR26 diagnoses and their families. In order to have up-to-date information about SKDEAS families, the organization would like to collect data about each family in our SKDEAS community.

Child's Information Below


We take the protection of your personal information very seriously. By providing us with your information, you consent to us collecting, using, and disclosing your personal information for the purposes described below:

Collecting personal information

We may collect personal information from you through our online registration process. This may include your name, address, email address, phone number, and other identifying information.

Use of personal information

We may use your personal information to communicate with you, provide you with information about our programs and services, and to fulfill any requests you may have made. We may also use your personal information for internal administrative purposes, such as managing our database and improving our services.

Disclosure of personal information

We will not disclose your personal information to third parties without your consent, except as required by law or as necessary to provide you with the services you have requested.


We take appropriate measures to ensure the security of your personal information. However, please note that no method of transmission over the Internet, or method of electronic storage, is 100% secure.

Contact us

If you have any questions or concerns about the collection, use, or disclosure of your personal information, please contact us at

By providing us with your personal information, you acknowledge that you have read this disclaimer and understand the terms and conditions described herein.