Skraban-Deardorff Syndrome Foundation

Parent/Child Registration Form

Parent(s) Information

The SKDEAS Foundation is building a strong community across the globe to support people with WDR26 diagnoses and their families. In order to have up-to-date information about SKDEAS families, the organization would like to collect data about each family in our SKDEAS community.

* First Name

* Last Name

Parent 2 First Name

Parent 2 Last Name

* Email

Email 2

* Address

* City

* State

* Postal Code

* Country

* Phone

Preferred Language

* Would you like to Opt-In to receive Board and General meeting updates?

* Do you have a child with a WDR26 diagnosis?

In what year did you receive the diagnosis?

Does your child have other genetic diagnoses? If so, please describe.

Child's Information Below

Child's First Name

Child's Last Name

Child's Birthday (month/day/year)

Child's Areas of Interest/Hobbies/Favorite Activities

Would you like your child's birthday to be included on the SKDEAS Birthday Club calendar?

Please use the following space for any additional notes.

Disclaimer

We take the protection of your personal information very seriously. By providing us with your information, you consent to us collecting, using, and disclosing your personal information for the purposes described below:

Collecting personal information

We may collect personal information from you through our online registration process. This may include your name, address, email address, phone number, and other identifying information.

Use of personal information

We may use your personal information to communicate with you, provide you with information about our programs and services, and to fulfill any requests you may have made. We may also use your personal information for internal administrative purposes, such as managing our database and improving our services.

Disclosure of personal information

We will not disclose your personal information to third parties without your consent, except as required by law or as necessary to provide you with the services you have requested.

Security

We take appropriate measures to ensure the security of your personal information. However, please note that no method of transmission over the Internet, or method of electronic storage, is 100% secure.

Contact us

If you have any questions or concerns about the collection, use, or disclosure of your personal information, please contact us at info@skdeas.org

By providing us with your personal information, you acknowledge that you have read this disclaimer and understand the terms and conditions described herein.