Family-Led Giving Campaign


  • $39,741

    Raised

  • $25,000

    Goal

About this Cause

The SKDEAS Family-Led Giving Campaign is a grassroots initiative powered by the families of individuals affected by Skraban-Deardorff Syndrome. This crowdfunding effort unites families across the SKDEAS community, each driven by a shared commitment to foster hope, advance research, and build resources for those impacted by this rare genetic condition. Guided by love and determination, these families are reaching out to friends, loved ones, and compassionate supporters to help fuel the future of SKDEAS research and community support. Every contribution, no matter the size, strengthens our network and brings us closer to the answers, care, and connections that will uplift all individuals touched by SKDEAS. Join us as we work together, family by family, to make an enduring impact on the lives of individuals living with Skraban-Deardorff Syndrome.


Get involved and spread the word